Updates on Test's

So Hailey has had a few different blood test's done to check all sorts of levels in her body, most of the test's came back higher then the doctor wanted to see but she made it clear that she should still be okay, but one test ( I can't remember the name of test for the life of me) was so high off the charts, that even for an adult it would be bad. She has never seen it be so high in a toddler that she doesn't know what to do or think, so she sent off all the results to her specialists, her pulmonary dr, her gastroenterologist, her dermatologist, and her neurologist. I'm still waiting to hear back to what they think it could possibly be. We have her Florid Sweat Test finally coming up next week, the last little test to see if its CF or not. All the other test's and symptoms are pointing it to CF so I have to wait and find out. I am just so thankful that I have David's mom by my side during all of this, the moment she found out that Hailey had been so sick she has been helping me through it, telling me what to expect next and how to try to stay calm. She has been dealing with CF with her daughter since she was 3 months old, and Kelsea is now 12 and fighting and strong as ever. Ever since Hailey has her first seizure back in February, she has had countless more in her sleep, and one while she was awake. When the doctor told me that day that she could of lost the fight that day, my heart stops every time she starts seizing, I can't handle having another doctor say that she might not make it through this one, and that I need to "prepare" myself for the worst. Hearing that as a mother was the hardest thing in the world. I cherish every moment that I am with her, and take full advantage of seeing her every day as she grows up. Her doctors are glad to see that she is developing well, and is very ahead in some parts for her age. She loves her big girl panties, and hates being in her diapers now. She still has accidents but she knows when to run to the potty. It's coming along great! I have also come to realize that my little artist is right handed, she does everything with her right hand. She is getting so big, and I love her very very much. I want to keep her around as long as possible. So whatever illness this is that is causing her to be so sick, and to not let her body get ride of the pneumonia better pack its bags and leave, because I won't stop until she is healthy.

Vent

I have been needing to vent for a while..

Why does it seem that when things should be looking up, instead they are spinning down further and further, deeper in the black hole?

On a better note, Hailey NO long spits up. They found out that anything she eats or drinks that has a thinner consistency then honey or nectar, it comes back out of her stomach, sits on her vocal cords, and slowly drips in her lungs. So the diagnosis is was that she has had pneumonia for the whole short 7 months she has been in this world. After adding things to thicken her feedings she is doing much better, now to just get over the double ear infection hump. I am hoping by her first birthday she will be healthy for once, and maybe not have her milk protein allergy. I am already starting to plan her first birthday! I know where it will be held and the theme of the whole deal. Now to just pick one of the dozen invites that i have chosen as a favorite on a website that I love! And order them, and figure out how many people to invite!

This past year has gone by so fast! I wouldn't trade anything for it. Tough times have came, some to stay and some have left. We learn from the things that go wrong in our life, I just wish there was a easier way to learn those lessons, instead of having the heartbreak, hurt, and countless hours of tears and sleepless nights. I have also been blessed with great times with friends, and family. I have witnessed my daughter grow, she started crawling at 7 months and saying "momma" and "dadda" at 6 months. We're still waiting on those teeth, and hair but those too will come with time.

She loves frozen strawberries and blueberries

She loves trying to follow our dogs out the dog door to play. Needless to say I always catch her, and our dogs don't seem to like her now that she crawls, maybe it's because she eats there food, pulls their hair, and chases them. Why they don't love any of that I don't know, because she does all those things to me, but I still love her!

She doesn't like getting photo's taken of her late at night, especially if she is naked, and if its done by her Aunty Jennifer, who kisses her way to much in Hailey's opinion.

She loves sticking anything into her mouth that she possibly can, including shoes.

I loved her from the moment she came into this world, even through all the sleepless nights, and visits to the hospitals. She is silly, she crawls flat footed not letting her knees touch the ground. She may be somewhat hairless, and have fat legs or cheeks. But she is my Hailey bug.

I could write for days about her, but I think I will end it here, for I believe she is getting hungry because she is trying to chew on my toes!