Hailey and her silly personality

As Hailey is growing up everyday her personality is showing more and more. Some days I see myself in her, and others I see Shane. I'm amazed at how fast she is learning things and understanding. She is so proud of herself for being able to point at every body part (even her elbow and knees) that she claps and asks me for a "five".

We were walking through the mall the other day down in Mesa before her doctor appointment with her Pulmonologist, I was explaining to her that we don't talk to strangers or run up to random children and say hi. She responds with her normal "okay" and so we keep walking. The next thing I know, we are passing these nice men working at one of the booths and she lets go of my hand and runs up to them and shouts "BYE MOM" then proceeds to have a conversation with these men, they were cracking up so hard.

She has also started playing with a toy cell phone that I got her a few months ago, and while we were driving she was in her car seat, phone up to her ear (even the right way!) and was just blabbing away, I made the mistake of asking "who are you talking too? Did you call Daddy?" She gave me the grumpiest look and responds "Hush Mom! Phone!" So apparently when I'm on the phone with David, or doctors, or work (just about anyone) its cool for her to come up to me and repeat "Mom, mom, mommy" until I respond. But if I happen to interrupt her little fake conversation, the world must stop on its axis.

She is going to be just like her dad when it comes to reading. She LOVES books. Any time we go to walmart she asks for a new book, which, if I can splurge a little, I usually give in and go on a hunt for a new interesting book for her. She will sit there and look at books the entire trip to phx and back, while in the dr waiting room and just about any where.

She has to be sedated again either this month or next month depending on what her Neurologist decides because they are looking into a brain abnormality that causes part of the back of the brain to push on a certain nerve which causes the chronic cough, aspirating and just about every symptom that she has. They have to do an MRI on her, and she is too little to stay still during the test. The major scary part is, its only able to be corrected with surgery, on the head. Another major surgery for mommy and Hailey to go through alone. I had them run the sweat test again, just to double check the numbers. The first test came out positive, the second negative. We did it again just in case, and found it to be negative thank goodness. The number is suppose to be at 40, her's where at 19 on her right arm, and 20 on the left. We also see the Gastro doctor on the 1st, to repeat her Swallow Test that she hasn't had since she turned 1. So I can see that I am going to need to save up some money from my next check, and buy a few new books to keep her calm.

On good news, according to the charts at the lung dr, she has gained 2 pounds and grew an entire inch since her last visit, leaving her at 23 pounds even, and 32 inches!

Updates on Test's

So Hailey has had a few different blood test's done to check all sorts of levels in her body, most of the test's came back higher then the doctor wanted to see but she made it clear that she should still be okay, but one test ( I can't remember the name of test for the life of me) was so high off the charts, that even for an adult it would be bad. She has never seen it be so high in a toddler that she doesn't know what to do or think, so she sent off all the results to her specialists, her pulmonary dr, her gastroenterologist, her dermatologist, and her neurologist. I'm still waiting to hear back to what they think it could possibly be. We have her Florid Sweat Test finally coming up next week, the last little test to see if its CF or not. All the other test's and symptoms are pointing it to CF so I have to wait and find out. I am just so thankful that I have David's mom by my side during all of this, the moment she found out that Hailey had been so sick she has been helping me through it, telling me what to expect next and how to try to stay calm. She has been dealing with CF with her daughter since she was 3 months old, and Kelsea is now 12 and fighting and strong as ever. Ever since Hailey has her first seizure back in February, she has had countless more in her sleep, and one while she was awake. When the doctor told me that day that she could of lost the fight that day, my heart stops every time she starts seizing, I can't handle having another doctor say that she might not make it through this one, and that I need to "prepare" myself for the worst. Hearing that as a mother was the hardest thing in the world. I cherish every moment that I am with her, and take full advantage of seeing her every day as she grows up. Her doctors are glad to see that she is developing well, and is very ahead in some parts for her age. She loves her big girl panties, and hates being in her diapers now. She still has accidents but she knows when to run to the potty. It's coming along great! I have also come to realize that my little artist is right handed, she does everything with her right hand. She is getting so big, and I love her very very much. I want to keep her around as long as possible. So whatever illness this is that is causing her to be so sick, and to not let her body get ride of the pneumonia better pack its bags and leave, because I won't stop until she is healthy.